Which resources do patients and their families have?
Just as every case of Fabry disease is unique, each patient has his own individual needs. There are therefore a large number of internal and external tools available to meet the challenges of life. We are thinking of family, friends, fellow sufferers with Fabry's disease, doctors and other health experts. An extensive network of local, national and international aid groups also helps people to take their lives into their own hands. Below is a list:
[INSERT LOCAL FABRY PAG INFORMATION AND OTHER USEFUL PATIENT TOOLS SUCH AS APPS, ETC]